This article was originally published in Domus 963 / November 2012
At the start of this year, I got diagnosed with type 2 diabetes.
It's the kind of diabetes you get if you live in the West, eat too
much and don't exercise enough. It means that I have too much
glucose in my blood and my insulin isn't able to convert enough
of it into energy my cells can use. I have to admit, it wasn't a
surprise. I knew I was overweight, and had had conversations
before with doctors about being pre-diabetic. This time was
different. My blood sugar level wasn't merely pre-diabetic. This
time, my doctor told me in no uncertain terms that I was going
to be injecting myself with insulin in the future. The Rubicon
had been crossed.
A blood test in late December 2011 had established my HbA1c at
12.2. Your HbA1c is a long-term measure of blood sugar. At 5.7 to
6.4, your diagnosis is pre-diabetic. Above 6.5, you're diabetic.
I left the clinic upset and angry. I didn't want to accept the
medical prognosis. I didn't want to inject myself with insulin
forever. I didn't want to go blind and I didn't want to lose my feet,
both stereotypical long-term diabetic outcomes.
But I saw that I was faced with a body that was in bad shape
because of the "software" that was running on its brain. There
is a movement — at the moment a weak signal among "alpha
geeks" predisposed to obsessive tendencies — preoccupied with
measuring and quantifying the self. The idea itself isn't new:
notice and measure things about your "software" and your
"hardware" and then try to affect them. But as ever, technology
trickles down to the consumer and makes what used to be
difficult easy, and what was once obscure accessible.
Perhaps not coincidentally, the first generation to have built
their careers on the Internet is slouching towards middle age.
The market is now full of smart, wearable devices that passively
observe, record and communicate your daily activity and
even the quality of your sleep. Shoes will "talk back to you",
telling you how far you've run or how high you've jumped.
Scales wirelessly communicate your weight. On the receiving
end, easy tools record the things that can't yet be passively
measured, like the kind of food you're eating or your mood.
The theory goes: if you have the data, you can experiment with
the outcome. This so-called "personal informatics" movement is
what happens when Moore's law collides with publishing's "self-help"
category. The promise of this movement is nothing less than
minimal-effort self-improvement; of the language of A–B testing,
always in beta, perpetual optimisation and analytics, but applied
to the body and mind, to yourself.
Fitness by design
Can data heal? Yes, argues Dan Hon, whose type 2 diabetes spurred him to embrace "personal informatics" devices such as the Nike FuelBand and the Fitbit. Yet as such devices become a part of everyday life, a new challenge emerges: the Balkanisation of health data across multiple platforms.
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- Dan Hon
- 28 November 2012
- Portland
Updating my software
So a few things happened. I got a Lifescan OneTouch UltraMini —
a blood glucose meter — and started measuring my blood sugar
first thing in the morning, and before and after each meal.
I bought third-party software — Glooko — so I could liberate
the data held in my blood sugar meter. I got a Withings scale
that uploaded my daily weigh-in to the cloud. And I got a Nike
FuelBand and a Fitbit — two devices that I wear all day and that
silently watch over me to make sure I'm moving enough. Six
months later, my HbA1c is at 5.4: comfortably inside the normal,
healthy range. From one perspective I had a major reality check
from a medical professional, delivered in an uncompromising
manner. On the other hand, a suite of services and devices I
assembled helped me become aware of my behaviour and then
change it. Effectively, I'd healed myself through data.
Halting an epidemic
An obesity epidemic now faces most Western countries. In the
US, an over-medicated and increasingly hefty population faces
a woefully inadequate, expensive and fragmented healthcare
marketplace. In European countries, welfare states buckle
under the strain of an ageing population hitting them with a
left-right combination of a diminished tax base and increased
demands on healthcare, with growing obesity a major problem
across the continent.
The human race is essentially getting larger and unhealthier.
Because of that, this generation of children is the first in recorded
history to have a shorter life expectancy than their parents.
Although simplistic, we know that the answer lies in eating
healthier food and doing more exercise. Although there are
signs that some governments are taking notice of the potential
in "nudging" behaviour, few dare get into the business of
explicitly telling people what to do. So the fact that people can
take better care of themselves through positive behavioural
change, supported by simple inexpensive devices giving
supportive nudges, is incredibly encouraging.
We don’t yet know much about the psychological or cultural impact of learning so much about ourselves through the prism of performance metrics
Loose pieces, none of them really joined
The last six months have given me a deep, visceral insight into
what it means to experiment with personal informatics. In a
word, the best way to describe how this explosion of health
data works is "messily". Let me count the ways my health is now
looked after. At the professional end, an electronic health record
(EHR) is held by my primary care provide and my insurer. My
clinic has rolled out access to my EHR through software called
MyChart, but I can't get access to it because they appear to have
the wrong social security number on file, but it promises the
ability to view test results, schedule appointments and refill
prescriptions, among other things. The consumer-accessible
version of my data is split between a service run by WebMD and
my insurer, Cigna, one of the largest in the United States. At the
amateur consumer-of-health end, I have my own devices and
software, each living in their own ecosystem and producing
their own, somewhat overlapping, circles of interoperability.
My scales will tell everything else: how much I weigh, my
body mass index (BMI) and my fat percentage. They talk to the
Fitbit web service (though Fitbit don't make it easy) and Budge,
a service that sends me a daily email reminding me of my
weight. It seems the strategy of Withings is to be a producer, not
consumer or aggregator, of data.
The movement-related devices and services are trickier. Nike's
Nike+ Running is a silo, as is their FuelBand: data enters from a
device or application and stays there; there appears to be no way
to either import or export data from their services. It's possible
to imagine a universe where Nike's devices and services work
with each other in a harmonious, well designed, walled garden.
Fitbit, though, is quite ready to upsell a service that allows its
subscribers to keep track of more data. Their strategy is to be the
one-stop shop storing my personal health-related data, from
blood sugar to food intake, from steps climbed to my heart rate,
blood pressure and mood. To combat this Balkanisation of health
data, RunKeeper, a physical activity tracker, announced an open
Health Graph in June last year.
As it stands, my health data is all over the place. Some of it is
in a Nike silo. Most of it is in either EHRs (to which I have some
access), or a vault run by WebMD, because my insurer has made
a deal with them instead of Microsoft Healthvault (Google is
nowhere to be seen: Google Health was retired in late 2011).
While my diabetes data is downloaded over USB into software
produced by the meter manufacturer, it is then examined by my
doctors and typed back in to my EHR. They wouldn't know what
to do with my FuelBand or Fitbit data.
Gaming the numbers
This messiness is problematic. The "gamification" that many
contemporary web services look to exploit relies on broadly
consistent tracking and sharing. But if personal informatics is at
the beginning of its uptake-curve, so is the application of these
game mechanics to our social lives: the typical methodology
at the moment involves measuring, awarding points and then
levelling up to (generally meaningless) badges when some sort
of milestone is reached. Yet I, and many others, am some kind
of proof that such approaches can work. If these techniques
scale across a wider population (no pun intended) can this
combination of real-time feedback and positive peer-group
pressure begin to rein in the obesity epidemic? There are at least
two obvious stumbling blocks: consistency and fatigue.
When it comes to physical exercise, every scrap of data feels
important. It is distressing when a run "doesn't count", or
counts only in one silo. I know I ran today, but my services
say I didn't. Now my 23 days in a row are back to zero. A single
syncing error can be psychologically off-putting, and mortally
wound the potential of gamification. Motivation needs all the
help it can get.
Then there is the suspicion that while these gamification
methods work, they won't work for very long and "badge
fatigue" will set in. At which point the problem becomes
rather more interesting — if you're in the business of selling
numbers to track, how do you get me to care about this number
instead of that? When it comes down to it, Fitbit, Nike and
RunKeeper will all pretty much be tracking the same thing.
There are only so many ways in which one can weigh one's self
and track one's movement. There is a tension at the core of all
this. Given that it all relates to my body and my motivations,
interoperability is necessary to coherently track, share and
bring together all my data, centred on the self. Yet newly
emergent and competing services also have to differentiate
themselves from each other, to move apart as they jostle for
space, looking for a productive niche.
Personal industrial design
As such, the business of differentiation becomes another
illustration of the philosophies behind these new companies:
those that are ecosystem and service-driven (Fitbit, RunKeeper
and Withings) and those that are, due to an accident of history,
atom-based (Nike). It turns out that this is also played out
in industrial design. Companies like Fitbit and RunKeeper
betray an engineering-led Silicon Valley aesthetic of utility for
utility's sake and are, for lack of a better term, services. They
are not "fun", and at worst difficult to use. They do not mean
anything other than to provide you with value. A Fitbit falls
over backwards to offer you features, settings, preferences
and customisation options. With its altimeter, three-axis
accelerometer and wireless syncing system, Fitbit is in some
technical respects better than Nike's FuelBand. Simply, it tracks
more; it exemplifies services designed for someone who flicks
through Men's Health while they browse Gizmodo.
A few hours up the US west coast though, lies a company built
upon not just sport performance, but also personal expression,
fashion and style. Nike's FuelBand is worn around your wrist.
It looks and feels better, with its black rubber and distinctive
pinpricked colour display inviting discussion. There are limited edition
designs, like the translucent FuelBand ice, betraying a
company steeped in diffusion lines and brand extensions. In
comparison, the Fitbit is discreetly clipped (Dilbert-style) to the
belt, or pocketed and hidden from view. FuelBand has just one
button to cycle through its "Fuel" metric, time, calories and steps.
Though it is a silent device that constantly logs your activity, it is
not out of sight — it is permanently visible, a wearable statement.
You're not given the choice of hiding it. While it may be passive,
you are constantly reminded of its presence, invited to press the
button to see your score and, upon reaching your goal, rewarded
with the dopamine of a multicoloured achievement animation.
The beginning
Though Fitbit and FuelBand are mass-market products here
and now, they really ask questions of the near future. For this
is a rewarding but frustrating time. For those who have the
patience — or, in my case, the pressing need — it's possible to cobble
together some sort of functional personal informatics platform.
In the future, these devices and services should interoperate with
each other better, but it's clear that today we are at the beginning:
the hardware devices are only in their first or second iterations
as pieces of mass-produced technology, and most of the cloud
services are less than a few years old.
However, the majority of lower-level foundations are in place:
battery hardware, display technology, low-energy wireless
communication and sensor platforms are now commonplace,
and it is easier than ever to deploy web services that can scale to
meet demand when users begin to find each other.
What isn't clear is the design process of ecosystems to support
passive, wearable devices that are intensely personal and mix-and-
match. We don't worry about fashion being interoperable,
about wardrobe-archive issues, or being able to use a piece of
clothing from five years ago with another bought last week.
Increasingly, we will. So the kind of battles being played out
around interoperability, data sovereignty and social visibility in
personal informatics represent a kind of avant-garde as core issues
of the "Internet of things". The principles of the much-hyped "smart
cities" market, for instance, are being tested right before our eyes,
as personal informatics goes up against the obesity epidemic.
Yet we don't know much about the psychological or cultural
impact of learning so much about ourselves, of seeing
ourselves through the prism of performance metrics, never
mind displaying that in a public form. This is perhaps the most
intriguing aspect of personal informatics: it lets us know who we
really are, whether we wanted it to or not. Dan Hon (@hondanhon), interactive creative director at Wieden+Kennedy. Among the many projects he has worked on is a campaign for Nike's FuelBand, discussed in this article
The images in this article
are taken from Databetic, the
blog created by Doug Kanter
to keep a public record of
data regarding his condition
as a diabetic and track the
pathology's development
over time.